Fundraising…An Adaptive Bicycle for Skylar!

Ok, so I have been thinking a lot about this lately and figured I just need to put it out there.  All of you know that Skylar has autism (unless you are brand-new to this blog).  What a lot of people don’t know is that she also has epilepsy and hypotonia, which is low muscle tone.  She has always had issues with balance, being clumsy, and muscle strength.  She started receiving physical therapy for gross motor skills and occupational therapy for fine motor skills at the age of 3.

I don’t like to focus on what Skylar can NOT do, but it has always made me sad that she can’t ride a 2 wheeled bicycle.  Believe me when I say that we have worked & worked at helping her to achieve this goal.  She LOVED riding a tricycle and a bicycle with training wheels when she was younger, but as she has grown there isn’t a bike with training weels that will support her weight.  She has grown like crazy and weighs over 100 pounds now.

Last summer, I looked into getting Skylar an adaptive bike like the one pictured above.  I knew that it would help her muscles, be a great form of exercise, and bring her immense joy.  What I didn’t know was that they cost anywhere from $1,200 to $2,000 dollars for the bike that we need.  As I set out trying to figure out how we could save the money to get one, I quickly realized that it would take a long time to do that.

I’ve thought about several different ways to raise funds.  My mom is going to come in and do a jewelry show and donate her proceeds to our bike fund.  If you are interested in participating in the jewelry side of our fundraising click here to visit her webpage and her contact information is at the top of the page.  The jewelry she sells is beautiful and very reasonably priced!

I also really like the thought of people being able to donate a couple of dollars and in return getting something fun that they can use.  So, my thought is that I would also love to do a set of digital journal cards that can be used in Project Life albums or in any type of scrapbook, that people can buy and the proceeds would go to help Skylar get her bike.  So this is what I am looking for:

-someone who is digitally savvy that would be willing to donate their time & talent to design a set of journal cards that could be used for Project Life.

Do you know of anyone that could possibly do that?  Please consider forwarding this on to anyone you feel could help us with this.  Anyone willing to help can email me at: iamjujublog (at) yahoo (dot) com

It is our total desire for Skylar to lead a happy & productive life.  She has brought tremendous joy to our lives & to so many that she has come in contact with.

Thank you for sharing our story and for making a difference in our sweet girl’s life!

Make it great!

JuJu

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4 thoughts on “Fundraising…An Adaptive Bicycle for Skylar!

  1. I was thinking about Skylar today since there in a NCIS marathon on today. I would love to help out. I was looking at the online catalog on your mom’s website and I saw a few pieces that I liked. How do we go about ordering? Let me know! Thanks!

  2. Have you heard about this organization?: http://losethetrainingwheels.org/

    I have many friends who have used them successfully to teach their children with disabilities how to ride bicycles. They were in Scottsdale about a year ago and might return or you could attend a workshop elsewhere. Where we live, it costs about $125 or so to attend. If you want to run a workshop I hear it costs about $5K but if there are enough people with an interest or you could find a sponsor, it might be doable. A regular bicycle, if Skylar could learn to ride one, would open up her life immensely.

    • Thanks for this information Julie. I did a bit of looking on-line & plan to look more into it. We have worked for a long time to get her to ride a 2 wheeled bike. The hypotonia is what multiple doctors feel is the main issue.

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