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This past Saturday we had the opportunity to attend a 60′s themed dance being held by a local program that puts on activities and events for individuals with special needs.  The program is called SNAP (special needs activity program).  It is really neat how the Lord orchestrated our learning about SNAP through the free swim at the Y and one of Chris’ cadets.  

Skylar was really excited to go and after I was asked to help serve dinner to the attendees, we decided to make it a family event.  Skylar actually went online and googled different 60′s themed outfits to get an idea of what to wear.  We got a suede vest at Goodwill and I made the headband out of some brown cord that I picked up at Hobby Lobby and a sunflower I had in my craft stash.  I knew that it would be important for Skylar to be comfortable or she wouldn’t want to stay long.  

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Before we left for the dance we took a bunch of portraits on the front porch.  The picture below was my absolute favorite!  It is a great picture of what it is like in our home.  Just complete silliness!  I told Chris that his glasses looked a bit more like Elton John than John Lennon!

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Oh how I love this crazy man!  

When we got to the dance, Skylar immediately got into line to get her food.  I loved having the opportunity to serve dinner to the other attendees.  It gave me a chance to say hello to everyone.  So many smiles, so many thanks!

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This was pretty much all Skylar cared about!  The food!  One of the guys she had met the week prior at bingo asked her if she wanted to dance and I heard her say “Nope!  I’m eating! I’ll dance later.”  

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It was fun to watch Hailey and Chris eat dinner and chat.  They truly enjoy each other’s company.  

Not long after dinner, people started making their way on to the dance floor.   As I watched them start dancing, some by themselves and some as couples, I remarked to Chris that I loved how there was no pretense.  No one looked worried about what other people were thinking.  There wasn’t anybody in the corner whispering about anyone dancing.  There were only smiles, complete joy!  My heart was overwhelmed as I watched everyone dancing and saw all the caregivers just beaming.  These were truly our people!

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Chris, Hailey, and I danced together for well over an hour.  Skylar didn’t want to be anywhere near us.  Total teenager!  While we were dancing, a sweet lady came up to me and shouted:

“Would you like to dance with me?  I am a FANTASTIC dancer!”

Well, how can you say no to that?

We danced for 3 or 4 songs and she sang her heart out the entire time.  It was awesome!  I loved hearing her sing all the 60′s music.  

One of my favorite parts of the night was watching Chris dance!  It was so funny. He had a blast.  He was definitely the guy all the ladies wanted to dance with.  He treated them all like princesses and they giggled with delight!  And just when I thought I couldn’t love this man any more than I already do, I watched as a lady in a wheelchair who was non-verbal reached out and grabbed his hand.  He took her hand, danced around her and just talked to her the whole time.  I fell more in love right there on the dancefloor!

The entire crowd errupted in cheering when the DJ played YMCA!  I told Chris that I was pretty sure that this was a 70′s song (it actually came out in 1978).  We figured that they must be playing a mix of 60′s and 70′s music.  That was until they played the Cha Cha slide, Celine Dion, and Taylor Swift.  That gave us a good laugh!  Not long after that, Skylar said her feet were tired and that she was hot!  These were both signals that she was done and ready to go home.

As we walked out to the car, both Hailey and Skylar remarked how much fun they had.  Chris and I definitely agreed that it was the most fun we’d had as a family in a long time.  One of the best comments of the evening came from Hailey. She said “I am so glad that I am a 21st century kid!  I could not have handled the clothes and the music of the 60′s!”  She is looking forward to the next dance, which is cowboy themed! (Can’t wait to see what Chris decides to wear to that one!)

We finished the night with a stop at our favorite frozen yogurt place and when Skylar walked out she said “This was the best night ever!”  I have to agree that it was pretty great!

And just to give you a little bit more of a glimpse into the silliness that is my family, I asked Chris and Skylar to look serious for a couple of pictures and this is what I got.

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Heaven help me!

Make it a great week!

JuJu

 

 

 

 

 

 

 

 

 

 

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These 3 guys are my favorite fathers on earth!  From left to right, my brother-in-law, Jeff, my husband, Chris, and my dad, Tom.  All 3 of them are dedicated dads, hard workers, great husbands, spiritual leaders, & they are all totally funny!  They always have a good time when they are together!

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I am so thankful for a husband who loves his daughters with an amazing kind of love!

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Who prays with them over FaceTime while at military training.

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Who is willing to picture text clothing options when his daughter is sick!

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Who sits in a warm hyperbaric chamber so that they aren’t frightened.

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I’m also thankful that he loves our nieces & nephew like they were his own!

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And that he is never afraid to be silly!

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I’m also thankful for Jeff!  I’m so thankful that he came into my sister’s life when my oldest niece, Rebecca was a year old.  He has been an amazing dad to my nieces & nephew and you only have to be around them for about 5 minutes to realize that they are CRAZY about their dad & that the feeling is mutual!  

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When my sister went through cancer years ago, Jeff never left her side & I never stopped thanking God for bringing him into our family.

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And then there is my dad!  He has been such a source of encouragement to me and to my sister for our entire lives!

He is silly!

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He is competitive!

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And he is always a helper for Skylar!

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But I must say that one of the things I love the most about my dad, is how much he loves my husband!  He has been a spirtual mentor to Chris and he is one of the first people Chris goes to for career advice.

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And it sure doesn’t hurt that they share a deep love for the Arizona Wildcats!

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I can’t convey enough to you how blessed I have been by these men!  I am so thankful that the Lord saw fit to place each and every one of them in my life.  

Happy Father’s Day!

Make it great!

JuJu

 

 

 

 

 

 

 

 

 

 

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Where I’ve Been

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I realized that I haven’t written in this space for quite some time.  Thank you so much for the messages asking if everything is alright with our family.  The answer is:  everything has been good.  We are doing well.  Living life, focusing on what matters, learning new things, and enjoying each other.

I have several reasons that I have stepped back from sharing here on the blog.  The first and foremost reason is the division that exists in the autism community.  It really is totally ridiculous.  I’m so tired of people accusing others of not loving their kid fully if they wish that they could heal them.  I’m exhausted by the constant “I have it rougher than you” and the “you just don’t understand” mentality.  

We shouldn’t be beating each other up over what we do or do not do for our children.  We should be encouraging, listening, and coming alongside one another to walk this difficult road together.  

The other reason I haven’t written here is that I don’t want to constantly write about autism.  Autism is a big part of my life.  How could it not be?  Having two children on the spectrum, I am constantly faced with the ups and downs of autism, but I am so much more than just a parent to children with special needs.  

Today while driving home from the gym I said the following to Chris:

I’ve been thinking about blogging again, but I don’t just want to write about autism. Although it is a huge part of our lives, it doesn’t define me.  I love our girls and I want to share about their struggles and their triumphs, but I also want to share more about me.  I want to:

-write about the different books I’m reading or listening to

-get back to sharing my project life pages that I so love to put together

-share our adventures in homeschooling

-share the different things we are implementing in our home that make everyday life easier for me & the girls

-share the life lessons I really want the girls to learn

-share the constant funny things the girls say

-share about balancing my desire to be healthier with my love of food

-share what we are doing to really develop deep friendships & community with those around us

-share about our faith in Christ

I really just want to share my life with those that come to this space.  Share whatever is going on in our life at the time.  I don’t want to get wrapped up in number of readers, how many comments I receive, or other statistics.  My hope is that people will come here, be encouraged, laugh, and connect on a personal level. That is all I want!

Chris’ response was simple, yet just what I needed to hear.  He said:

I think you just wrote your blog post & I think it is perfect.  You ARE more than just a mom to children with special needs.  You have a lot to share with others.  I love you!

So there you have it my friends!  I look forward to being back in this space.  Sharing our lives with you.  Being real.  Being myself.  Some of the things I share might bore you to tears, but other things might excite you.  My one desire is that you will connect in some way!

Make it great!

JuJu

 

 

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Some days Skylar really struggles with going to church.  Yesterday, as I sat in worship, I got to thinking about why it is often difficult to take an individual with special needs to church.

It is difficult to explain the fears that many parents of special needs children have in taking their children into a worship service.  I hear from many families that they gave up going to church a long time ago!

Why is that?  Well, let me share with you my own thoughts on this matter.  Let me start off by saying that I am not speaking for all families that have a child with special needs, just MY family!  So here we go!

1)  PEOPLE STARE

This is a biggie!  I can’t even begin to tell you about the stares that we get.  You would think that it would be better in church, but nope..it isn’t!  This seriously saddens me!  I understand people’s curiosity, but for the love of all that’s holy, quit staring!  This wasn’t as much of an issue with us when Skylar was younger, but as she has grown into her teenage body, it has become more of an issue.  When you have a younger child in service who is a bit restless people don’t even think twice about it, but when you have a child who is taller than her mom and the age of a young high schooler, people are staring when she is hugging me tightly, holding my hand, rubbing her face against mine for that deep pressure input, or moving “a bit more than she should” during worship.  You know what?  If you can’t move during worship, when can you move?  One thing I won’t ever do is tell Skylar that she can’t dance during worship or tell her that she is singing too loud!  That is how she worships and I will never try to change that!  

2)  PEOPLE ARE JUDGEMENTAL

We do make Skylar stand and join us during the worship segment of church.  Some days she adamantly says “I am NOT singing with you today!” but we still ask her to stand and read the words on the screen.  

When it comes time for the message, we allow Skylar to use her i-pad (with the volume completely silenced). Some of you might think that is wrong and that is ok, but until you’ve walked a mile (or a quarter of a mile for that matter) in my shoes, then please keep your judgements and opinions to yourself!  This keeps Skylar happy and entertained so that Chris and I can listen to the sermon and be encouraged by God’s word!   My guess is that most people see Skylar on her i-pad, think that she is some teen that is bored, make a snap judgement about our parenting abilities, and then give us dirty looks, roll their eyes, or make comments loud enough for us to hear them.  Guess what?  When this happens, most people would be so hurt and angry that they wouldn’t darken the doorstep of your church ever again!  But oh no…not me!  I have been known to turn around and say “Just so you know, my child has autism!” which in turn usually leads to a horrified expression and something along the lines of “I’m so sorry!  I had no idea!”.  My point is not to shame people, even though that is often what they are trying to do to me, instead it is to educate people.  I hope that you will think twice before making snap judgements.  Church should be a safe place for people, instead many people feel more judged at church than any other place they go.  

 

3)  MOST CHURCHES DON’T HAVE PROGRAMS FOR INDIVIDUALS WITH SPECIAL NEEDS

When we meet other families with children who have autism and they find out we go to church, one of the first questions they ask is “Does your church have a special needs program?”  None of the churches that we have attended here in Prescott have had such a program.  This is something that we, as a church, need to step up and do something about.  This would be such an amazing ministry and blessing to families in our community!

Several months ago we were talking to some friends of ours that are church planters, who are very aware of Skylar’s needs.  The pastor said “Julie, as a church body, we are failing your family!”  I appreciated his candor.  He then went on to ask a question that I had never been asked in over 10 years of having a child with special needs.  ”What can we do as a church to serve families and individuals with special needs?”  Here are my responses:

-Churches need a buddy system!  We need individuals who will step up and hang out 1 on 1 with our kiddos during service.  Most of the time, most churches only have childcare/Sunday School for children through 5th grade.  Even though Skylar is in 8th grade, she wants to be with children that age.  Why not let her attend those classes?  If she had a buddy, whether it be an adult or an older member of the youth group, she could enjoy their lesson and be happy in that classroom.  The buddy doesn’t have to be the same individual!  Imagine if 4 people stepped up and said “I’ll take one week a month and hang out with Skylar!”  That would be awesome and I can guarantee you that not only would they be a blessing to us, but Skylar would be a blessing to them.  What a great thing to be teaching our youth!

-Churches need to come alongside families that have individuals with special needs and get to know them!  Many of us have learned more about patience, love, forgiveness, mercy, and grace than we could have ever imagined by parenting a child with special needs.  I, for one, know that my faith has grown by leaps and bounds this past 11 years.

So there you have it!  These are the reasons that we often find it tough to take Skylar to church. I pray that you will be open to getting to know individuals with special needs at your church!  I am confident that they will bless you far beyond anything you ever imagined.  Their joy is contagious!

This past Sunday was just like most Sundays!   Skylar woke up in one of “those” moods.  She immediately started saying she didn’t want to go to church. Unfortunately, it set my mood for the morning and I was just dreading going into service.  As I stood during the first worship song, Skylar LOUDLY whispered “I’m NOT singing with you today mom!”  I tried to clear my mind of the stress and sadness and I immediately prayed that the Lord would comfort me.  I also asked Him to bless sweet Skylar through the music.  I remember questioning whether or not I was doing the right thing by continually forcing her to come to church and wondering if she gets anything out of it.  The third song we sang was a mix of an older worship song and the chorus to Hallelujah (Skylar calls it the Shrek song as it was sung in the first Shrek movie).  As I closed my eyes to focus on the chorus, I suddenly heard Skylar’s sweet soprano voice carry over most of the voices around us.  My heart was overwhelmed with joy at the sound of her praising God!  As a tear rolled down my cheek, I thanked God for such an immediate answer to prayer, for comforting me, and for Skylar, who is such an amazing blessing to our family!  I truly believe that the Lord gave me a glimpse of what hearing the angels singing will be like!  

Whatever you do today, make it great!

JuJu

 

 

 

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So those of you who know me well, know that I am not a big fan of Valentine’s Day. Why is there ONE day during the year to show your loved one that you really love them?  I totally believe that it is a day that merchants can charge $100 for a boquet that you would normally get for $15.  Don’t get me wrong…I love flowers, chocolate, and tokens of affection as much as the next person, but it means a heck of a lot more to me when Chris brings me those things on a whim, in July!  I am extremely blessed to have a husband who shows me and tells me that he loves me every day of the year.  For that, I am truly thankful!

Now that I have all that out of the way, I do like to do fun love themed things for the girls around Valentine’s Day and now that they are being homeschooled, I try to still do Valentine’s with them as that was one of their favorite things to do at school. Since they are not getting a ton of individual cards this year we made sure to get them a fun card.

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I will also admit that Valentine’s brings some of our favorite candies packaged together.  What other time of year, besides Halloween, can you get Twix and Snickers together in fun-sized packages?

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I have an entry table that I decorate around the different seasons throughout the year and during the month of February I do decorate it in a fun love theme.  The subway art hanging above the table came from the lovely ladies of Eighteen25.  I love their blog and all of their fun ideas.  I actually have a subway art for just about every season, holiday, etc.  They all are housed in the frame and I just open the back and rotate them.

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Each year I add to the mix and this year I made these yarn-wrapped LOVE letters. You can find the tutorial HERE.  I will just say that they were not as quick and easy of a project as I would of liked, but I do love the finished product.  The frame with the “love u” art also came from Eighteen25.  That frame also houses multiple 4×6 sized holiday themed prints.  This makes a really fun gift that keeps giving all year long! You can find the links for the subway art and 4×6 framed art HERE.  The heart shaped candy dish is just a bowl from Target that I adhered to a candlestick that was given to us as a wedding present.  I glued them together with E6000, which can be found just about any place where craft items are sold (Michael’s, Hobby Lobby, JoAnn’s, Wal-Mart).  That was another really simple idea I saw on the Eighteen25 blog.  Their blog is truly one of my favorite, go-to places for projects.

This year we actually put a box of goodies together for my sweet friend, Heather who is experiencing her first Valentine’s without her husband.  As many of you know, going through a year of “firsts” after the loss of a loved one is so very hard.  We wanted to shower Heather and her kiddos with love as they go through this day without Buddy.

I do hope that you have a beautiful day with your loved ones, but most importantly, I hope that you shower those loved ones with love and affection all year long!

Make it great!

JuJu

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Hi everyone!  It has been an extremely busy February so far with homeschooling, travelling, working my It Works business, and keeping our home in order.  I don’t know about you, but I could use a little bit (or a lot) of pampering!

Today I am thrilled to have Michelle Pino of Skana Salon, a luxury spa in central New York, sharing some great tips on how to get that spa pampering in your own home, for a fraction of the cost!  Michelle also enjoys cooking, fashion, and all things beauty related.

Pamper the Skin You’re In

 

With Valentines Day approaching, love is most likely in the forefront of your mind. For women, love comes naturally.  We spend much of our time caring for children, friends, parents, siblings and co-workers.  This Valentines Day, why not turn some of that love inward and give your skin a luxurious dose of affection with some special pampering?

Often women use the excuse of being short on time and money as a reason for not indulging themselves with refreshing and rejuvenating beauty treatments.  Setting time aside for a spa-like treatment isn’t always possible, but you can work nourishing beauty treatments into your regular routine without much effort.  For beautiful, glowing skin it’s important to focus on hydrating your body from within as well as externally. Proper hydration does wonders for tired skin and helps vamp up any topical treatment by working from the inside to nourish your skin as well as your whole body.

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Internally
Drinking water should be your first priority for obtaining healthy skin. Not only will it improve the appearance of your skin, it will make you feel fabulous! Many women report the taste of plain water deters them from drinking enough.  Why not try a fruit infusion instead?  Simple to make and easy to drink, fruit infused water will quickly turn into one of your favorite pampering indulgences.  It’s wonderful for your overall health as well as your skin!  One favorite, especially during the cold months of winter, is a lemon mint infusion.

Ingredients
-1 gallon water
-6 Lemons, zested and seedless
-10 sprigs of mint

Directions
Combine all of the above ingredients into a large container and allow them to steep for at least six hours. If you like a strong lemon flavor, put the squeezed rind into the container to steep with the rest of the ingredients. If you find the mint flavor too strong for your liking, you can reduce the amount used.  If you prefer it stronger, add a bit more to taste.  You can strain this mixture with a fine mesh strainer to catch any seeds and mint leaves. This infusion is most refreshing when served chilled over ice.

Externally
Healthy skin also needs some pampering on the outside with regular exfoliation. Removing the dead, tired cells from the surface of your skin will reveal the healthy, glowing skin underneath.  Using a simple, homemade body scrub will rejuvenate your skin without breaking your wallet.  Try using extra virgin coconut oil combined with raw sugar. Mix one part oil to two parts sugar.  While the coconut oil smells divine on its own, you can also add a drop or two of an aromatic essential oil to boost the pampering factor.  Rose oil, jasmine and lavender are all wonderful choices, but remember: a little goes a long way.

Mix your oil, sugar and fragrance together in small bowl with a wooden spoon. Scoop the mixture with your hands and start rubbing it first into your driest areas. Using small circular motions, gently scrub your entire body and then rinse off with a warm shower.

Your new skin will be glowing, healthy and ready to enjoy the best Valentines Day ever!

Thank you so much to Michelle for sharing ways that we can take great care of our skin!  I’ve been looking for some great infused water recipes and the lemon and mint recipe that Michelle shared is one of the easiest I have seen!!

I’d love to hear what you do to pamper yourself!

Here’s to a great year (and beyond) of taking care of ourselves!

Make it great!

JuJu

 

 

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Here’s a glimpse at what’s been going on with our little family.

January started off with sickness for all of us:  bronchitis, pneumonia, and sinus infections.  We went through 4 boxes of tissue in 36 hours.  CRAZY!

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When Skylar feels bad, she insists on sleeping on this mat.  This is pretty much where she spent most of her days and nights.

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Sickness brought a LOT of television watching for us.  We got rid of our satellite t.v. last summer so we watched a couple of new shows on HULU and Netflix.

Oh Downton Abbey…how had we not met before?

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And this show is totally addicting!

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With the start of a new semester in school, we started a new curriculum!

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We are LOVING this curriculum!  Both the girls really love the art lessons.

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They also love the cooking segment each week.

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After studying the state of Massachusetts, we made a Boston Creme Pie.  It was delicious!

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I also had the opportunity to attend the It Works Global conference in Tampa.  One word:  INSPIRING!

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I got to dress up for a party one night of the conference.

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The night before I flew out to Tampa, I stayed at my sister’s house.  I loved taking silly pictures with my niece, Rebecca.

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Jenny, Jeff, Chris, and I also enjoyed a date night out when I returned home from my trip.  It was great!  The four of us don’t get to go out by ourselves very often.

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And last, but certainly not least, we finally got therapy services set up for Skylar here at home.  No more driving 4 hours round-trip to Phoenix every week.

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So there you have it.  A month filled with illness, travel, and new adventures.  It was crazy, but it was good!

I can’t wait to see what February holds for our family.  I’m planning on doing lots of reading, crafting, and wrapping!

You can read my full post on It Works! HERE

I’d love to hear what you all have been up to!

Make it GREAT!

JuJu

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Happy New Year friends!  I’m excited for all the possibilities that 2013 holds!  I must admit that I’m happy to close the door on 2012, and move forward into 2013.

As I sat trying to think up goals for 2013 and a word to focus on, the word GRATEFUL kept coming to mind.  I wanted to focus on being grateful and giving thanks in each and every situation of my life (good & bad).  So last week I settled on the word grateful!  Just when I thought I was all set the word LEARN kept popping up in my everyday life and in my mind constantly.  Learn is such a powerful word! It truly encompasses everything I want to accomplish, not only in 2013, but for the rest of my life.

When I first thought about what I wanted to learn this year, many things jumped out at me. I do want to learn a lot of different skills and crafs, but I also want to learn things that can’t necessarily me measured, photographed, or physically touched.

So this year I want to LEARN:

-how to knit

-how to play the cello

-how to be more grateful for my everyday life

-how to give grace, even when I don’t want to give it

-more about my community

-how to be more patient with my girls

-how to find balance in my life

And most importantly….

-I want to learn how to fully trust God with EVERY aspect of my life!  I want to learn to let go of my insecurities and doubts and trust that God is in control and remember that He has NEVER let me down!

Here is to a great year of LEARNING!!

Make it great!

JuJu

“.. I am a student of life, and don’t want to miss any experience. There’s poetry in this sort of thing, you know–or perhaps you don’t know, but it’s all the same.”

― H.P. LovecraftThe Complete Short Stories of H.G. Wells

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Dear Ann Coulter,

I’ve long thought that even though we, as Americans, are politically divided, that underneath it all, we are all still human beings.  Human beings that want what is best for this country. Human beings that care for others. Well, that thought ended last night!  I can’t even begin to put into words my utter disappointment when you took to Twitter and called the president a “retard”.  Really?

When you use that word,  you hurt thousands of individuals with disabilities.  One of those individuals is my sweet daughter.  We were told over 10 years ago that she had “mental retardation”.  These past 10 years she has taught us more than we could ever teach her.  She has taught us patience, joy, encouragement, forgiveness, hope, acceptance, and unconditional love.

Ann, our daughter is NOT a joke!  She is more than you could ever aspire to be! Open your eyes and your heart.  And for the love of all that’s holy, please think BEFORE  you open your mouth or pull out your smart phone.  Think of our sweet girl and know that you hurt her, and all those like her, with your insensitive and hateful words!

Ann, meet Skylar!  You could learn a LOT from her!

Signed,

JuJu ( A mother who will stop at nothing to protect her children!)

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I’ve spoken with many of you who want to live a healthier, more active lifestyle.  As a parent I desire to live a long time to see my children grow up.  Those of you who have children with special needs understand the need to live “forever”!  My biggest fear is leaving my children alone in this world!  I know that this is a common fear in our community.

Some of you may know that I signed on to be a distributor with It Works! Global back in April.  I have been quietly using their products for the past 6 months. I am just not one to shove product or my beliefs down anyone’s throat!  I figured that I needed to take the supplements and use the wraps so that I could show and tell how these products have worked for me. When Chris got home in August we agreed that we would start taking their vitamins and supplements together and see how we felt.   The Dynamic Duo (It’s Vital and Greens) pictured below has truly changed how I feel!  No more constant sugar cravings!  And the best part….no mid-afternoon nap to get me through the day!

So if you would like to read more about the It Works! products, Jaima over at Ring Around the Rosies Blog wrote a review for me this morning!  She strives to live a healthy, natural lifestyle.  I sent her some products last month and today she is sharing how they have worked for her!

You can read her review here!

I also have a Facebook page for my business.  It is:

It Works! Skinny Wraps-JuJu (Click here to go straight to my Facebook page and “LIKE” it!)

Chris and I are currently working on a Health Challenge that will motivate others to live a healthier lifestyle.  We would love to have you join us!

I have been so encouraged already by those of you who are loyal customers of mine who have written, called, & texted me to say how much It Works! has worked for you!  Our Ultimate Body Applicator (wrap) is the hottest thing on the market!

We have a wonderful Loyal Customer program that offers up to a 45% discount on products!

You can visit my business site by clicking here!  There are so many wonderful, natural products to help you get started on a healthier path!

Thanks for letting me share about how we are trying to live a healthier lifestyle!  We want to do everything on our end to be around a VERY long time for our precious girls!

Make it great!

JuJu

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